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Talk:Klippel–Trénaunay syndrome

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note

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from VfD:

Dicdef. Was listed for Speedy Deletion by Lucky 6.9. Not a candidate for Speedy Deletion, so I'm listing it here. If anyone would like to expand the article, a good start can be found here. No vote. SWAdair | Talk 07:29, 24 Jul 2004 (UTC)

  • I've replaced the dicdef with a stub. - TB 09:48, Jul 24, 2004 (UTC)
    • Good stub! Keep. I added the reference above; is that what you used for the article? -- Creidieki 08:05, 25 Jul 2004 (UTC)
      • Physicians desk reference - I suspect the web-site referenced uses it as a source or at least shares a common source with my book. - TB 20:09, Jul 25, 2004 (UTC)
  • Excellent stub! Thanks, TB. Keep. SWAdair | Talk 09:51, 24 Jul 2004 (UTC)
  • Keep, clearly. No reason this should ever have been listed, speedy or otherwise. Jgm 14:26, 24 Jul 2004 (UTC)
  • Keep. Excellent work team. Agree it shouldn't have been listed for any sort of deletion, but no process works 100% and this one has delivered the goods on this occasion. And we've all learned things I think. Andrewa 19:08, 24 Jul 2004 (UTC)
  • Four words does not an article make. Keep new stub. -- Cyrius|✎ 22:31, 24 Jul 2004 (UTC)
  • Agreed. Valid subject, useless substub and listing it here gave us a great new article. Keep! - Lucky 6.9 18:08, 26 Jul 2004 (UTC)
  • Comment: FWIW, here's the total content of the original anon contribution: Blood vessal formation problem. - Lucky 6.9 18:11, 26 Jul 2004 (UTC)
    • Comment: I take your point. My thoughts were and still are that it would have been less work IMO to have stubified it in the first place than to have listed it here, and that it wasn't ever a candidate for speedy. But once it was listed for speedy, listing it here was a good move IMO. This isn't intended to be an attack on anyone, just a reflection on how things can work better. Andrewa 20:49, 26 Jul 2004 (UTC)
  • Again, I agree. Except for the wiki, it looked like another one of those damned vandal bot listings that aren't anything more than a title and a body either with the title repeated or some ridiculous two- or three-word statement. - Lucky 6.9 22:05, 26 Jul 2004 (UTC)

end moved discussion

Well im a 15 year old girl who has had to deal with it. And I hate how people who have it say they can't play sports. Thats a lie. I play softball,football,basketball and throw discuss

Reforming this article to be accurate and up-to-date, and also renaming to match the proper naming of the syndrome

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Facts:
A. There isn't any "Klippel Trenaunay Weber" syndrome. It is simply Klippel Trenaunay Syndrome. Doctors have been misdiagnosing this for quite a while. However, it is agreed upon by most doctors, including those found at the Mayo Clinic, Boston Children's Hospital, Cincinnati Children's Hospital, and at the Klippel Trenaunay support group website. The Weber portion is actually part of a separate syndrome.
B. The symptoms are far too inaccurate. My guess is that the article only represents possibly half, or even less of KTS (Klippel Trenaunay Syndrome) affected people.
C. The treatments provided are sorely out of date, inaccurate, and possibly biased. Sclerotherapy, while a relatively new procedure, is only applicable in specific cases, and is not a cure-all for the syndrome, not by a long shot. Also, "debulkings" have had a decent success rate, especially as technology has improved over the past couple decades. There are also other non-invasive treatments that are not even mentioned.
D. The article itself is fairly old and needs a lot more content.

As such, I'll be making my best effort over the coming weeks to improve this article, and also to move it to its proper place. If you have any comments, questions or wish to help out, let me know!

Cool Matty 13:40, 17 November 2006 (UTC)[reply]

Adding reference: "Terminology

The medical community at times has used the terms Klippel-Trenaunay Syndrome and Klippel-Trenaunay-Weber Syndrome interchangeably. The consensus today is to distinguish K-T as hypertrophy and varicosity associated with port-wine staining; K-T-W ( more correctly called Parkes- Weber Syndrome) is similar but includes significant arteriovenous malfomations with shunting.

PWS can refer both to port wine stain, a component of K-T, and Parkes-Weber Syndrome." [1] 66.91.252.11 (talk) 18:35, 26 August 2013 (UTC)[reply]

References

  1. ^ http://k-t.org/?page_id=28

Images

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Does anyone have access to some images we could put up on this article to use as examples (ie, images of hypertrophy and/or port-wine stains that do not show the person's face)? --Politizer (talk) 03:55, 9 September 2008 (UTC)[reply]

Update I might have access to two images; stay tuned. rʨanaɢ talk/contribs (formerly Politizer) 13:51, 26 March 2009 (UTC)[reply]

Sourcings

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An interesting subject, but an article that could do with updating. This is a rare condition, so little to be found by way of reviews and other high-quality sources. Here are some:

  • PMID 9781914 is a large case series (1998)
  • PMID 14961121 identification of VG5Q (2004, Nature, doi:10.1038/nature02320), undermined by PMID 16443853 (2006) which casts doubts on the mutation
  • PMID 15741381 management of pain (2005, doi:10.1542/peds.2004-0446)
  • PMID 15905966 molecular pathogenesis (2005, doi:10.1007/s00018-005-4523-7)
  • PMID 16490119 pregnancy (2006, doi:10.1097/01.ogx.0000201924.87671.90)
  • PMID 16911369 review (dermatology, 2006, doi:10.1111/j.1365-4632.2006.02940.x)
  • PMID 18274338 review (phlebology, 2007,
  • PMID 18216519 review (plastic surgery, 2008, doi:10.1097/SAP.0b013e318062abc1)

For anyone who wants to take this forward. JFW | T@lk 11:51, 8 March 2011 (UTC)[reply]

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